Epidermolysis Bullosa


Boy with Epidermolysis Bullosa
Photo by: Wikimedia, Creative Commons

Epidermolysis Bullosa is a disease that can be inherited. It could appear after birth or soon after it. There are no gender specifications when it comes to this disease. Girls and boys could be affected. Most of the time, this disease is still benign in a child but things would be getting worse as a child gains age.

Those families with history of this disease should be watchful especially if a new baby is born because there is a possibility that the baby will acquire this kind of disease. These are the symptoms of Epidermolysis Bullosa. These symptoms can be observed right after a child is born. Having a difficulty in breathing, swallowing and crying are included. Take note of that. Blisters in most part of the body should also be observed. Another is abnormality in teeth and nails.

If you see at least one of these symptoms, you should have it checked by the doctors. Number of tests would be done if necessary. Genetic testing, Skin Biopsy and other skin tests would be done accordingly if your doctor senses something wrong.

There are also treatments that should be done if you or your child is diagnosed with this kind of disease. Your doctor would tell you if you need to cover the blisters with bandage or not. And if there is a need for it to be covered, he would also tell you what kind to use. Good hygiene would also help a lot to avoid infections. Aside from visiting your doctor regularly, have time to visit a dentist too. Have the proper diet and be aware of what food to eat and what food to avoid. Always wear something clean and you should always stay in a cool place. Do not wear fitted clothes that would irritate your skin. These are just some of the many things that you should avoid and do when you have the disease or if you are experiencing the symptoms.

For those soon to be parents, you should undergo genetics counselling if you have a history of this disease. This would lessen, if not completely eliminate, the probability of you having a baby with Epidermolysis Bullosa.

Epidermolysis Bullosa Awareness

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